#198: Jenna Luche - Thayer - International Advocate for Lyme Disease by Lyme Ninja Radio published on 2018-08-16T13:33:52Z In this episode you will learn: • How Jenna brings her experience from working with the UN to Lyme Advocacy • Why she believes the treatment of Lyme Disease patients is a Human Rights Violation • Actions we can take today to change the conversation about Lyme Jenna Luche - Thayer is a Consulting Senior Advisor for the United Nations on Human Rights abuses, and has been working at the United Nations for 33 years. She recognized the patterns of behavior surrounding Lyme Disease from her work at the UN as an abuse of patient rights. In response she founded the Global Response to Borreliosis and Coinfections Consortium, and works to get better treatment for those with Lyme Disease. Genre Health Comment by Jungle Techno What about those of us so sick that cannot get positive two tier testing (seronegative) but have positive Elispot and live blood analisys with spirocheates proving severe infection no one will treat say I dont have Lyme there’s many like me.. 2018-09-06T22:21:34Z Comment by Jungle Techno The sad thing is they are denying all acess to treatment for undiagnosed & misdiagnosed Lyme that has become chronic lyme in the UK.. we are left to rot & die with no hope of treatment or raising the funds for treatment when being denied disability benefits and in the rare cases awards are made its not enough to live on let alone cover any treatement or travel to see LLMD as UK has no specilists that have the knowledge & experience to treat eg ILADS trained.. some of us are slowly dying and suffering hourly for years trapped away from sociey bedbound for decades.. 😥 2018-09-06T21:47:49Z Comment by Jungle Techno LYME NINJA RADIO please can you do an interview in the future with Dr John Lambert ID LLMD from Dublin helping Irish & UK patients? 2018-09-06T21:39:44Z Comment by Jungle Techno Thank you Jenna great interview, second time listening as my brain isn’t great.. thank you for all you are doing! 💚 2018-09-06T21:30:31Z Comment by Rick Rolland A great interview! Jenna is fireball and just we need to break up the intense discrimination and persecution of Lyme patients. Thank you. 2018-08-22T04:58:20Z Comment by darith Awesome and very important Tick Borne disease interview with Jenna Luche-Thayer and very informative.Thank you. David R Thomas 2018-08-20T23:35:26Z